Welcome to Texas Association for Dysautonomia Awareness.
The mission of TADA is to support patients as they walk the difficult road of living with Dysautonomia. We hope to accomplish this through:
- Professional Support
- Educating primary care physicians on how to recognize potential Dysautonomia patients.
- Training specialist on how to best treat the Dysautonomia patients
- Community Support
- Raising community awareness to the Dysautonomia conditions and needs
- Creating a social bubble for Dysautonomia patients to know they are not in this battle alone
- Educational Support
- Walking alongside patients so they can be successful in their educational endeavors
- Educating support personnel on how to best help the Dysautonomia patient population
What is Dysautonomia?
Dysautonomia refers to a group of conditions in which the autonomic nervous system fails to properly maintain bodily functions. Under the umbrella of Dysautonomia there are many conditions such as:
- Postural Orthostatic Tachycardia Syndrome (POTS),
- Neurocardiogenic Syncope (NCS),
- Multiple System Atrophy (MSA), and
- Pure Autonomic Failure(PAF).
To put it into layman’s terms, a person with Dysautonomia struggles to maintain the basic bodily functions a healthy person’s body does automatically. The most common of these Dysautonomias is Postural Orthostatic Tachycardia Syndrome (POTS), affecting anywhere from 500,000 to 3,000,000 Americans. 4 out of 5 POTS patients are female. The diagnostic criteria for Pots is an exaggerated heart rate response upon standing of 30 bpm or more with the absence of hypotension. This is a chronic condition that is disabling for many patients. While the diagnostic requirement for POTS is a rapid increase in heart rate upon standing, other common symptoms include syncope, dizziness, extreme fatigue, trouble concentrating, headaches, brain fog, gastrointestinal problems, heat and cold intolerance, chest pain, and much more. POTS is not simple deconditioning or dehydration. POTS can be treated with a combination of non-pharmacological and pharmacological support. There are many known causes for POTS and therefore there is not a one size fits all treatment plan for all pots patients.